New Scientist have just published an interview with psychiatrist Simon Wessely with the irresponsible headline "When illness is mostly in the mind" which is advertised in their email PR as "How People Can Think Themselves Sick - how chronic fatigue syndromes are triggered by people's mindset"
I immediately wrote a comment about the unscientific interpretation of the data which I'll reproduce here.
His list of published work is here:on pubmed
I don't know which research he refers to in the interview.
Simon Wessley And CFS Sufferers Hurt By Wrong Headline
Simon has only shown that 33% of patients have recovered from CFS without knowing it and are merely de-conditioned from CFS, and 33% have been over-cautious with an illness that gives time-delayed feedback to activity, while the remaining 33% are managing their CFS exactly right and have no detectable psychiatric problem. At best 33% are "thinking themselves sick". There's nothing new in this, but it does prove that CBT and graded exercise doesn't cure 66% of CFS. If his research is correct.
I notice that Simon Wessley never uses the phrase "mostly in the mind", and in fact never in the interview says that CFS is "triggered by a mindset." Where do these exaggerations come from?. Sadly its the exaggerated headlines and summaries that people will remember, not the carefully worded answers given in the interview.
One counter-example is all that is necessary to prove a scientific theory wrong. 66% of patients are not cured by CBT and graded exercise, therefore the theory is wrong. 33% not only aren't helped, but they are likely to have been MADE SERIOUSLY WORSE by the application of CBT and graded exercise. Given that this is the defining symptom of the diagnosis of CFS, why wasn't the question asked? How many people were hurt by being made to do exercise that made them sicker? 33% is a high number, and can't be dismissed the way Simon appears to.
His own research proves that his theory is wrong for 66% of patients. He should interpret this to mean that there are a small sub-set of people who have recovered from CFS and can be helped by CBT and graded exercise, and the remainder are sick for reasons his theory can't explain. Only half of those who don't recover respond to graded exercise and CBT with "good improvement", and half do not respond well to this treatment. This would be an accurate and fair interpretation that would not lead to CBT and graded exercise being the "cure" for all.
Whoever chose the headline and the short summary that appeared in the New Scientist PR email should apologize to both CFS sufferers and Simon Wessley for misleading everyone.









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